Los Angeles, California
My mom's retina continued to fray after the surgery. There had simply been too much damage done by the shingles virus which had run rampant in her eye for six weeks before she started treatment for it. The rehab facility had never diagnosed it. They were too busy bringing in all kinds of specialists who could get a slice of her Medicare pie. You learn a lot through a process like this, including cynicism about it…
Ultimately, we opted not to put her through another surgery. It would only improve her vision from being able to see a hand waving in front of her face to being able to count fingers in front of her face. She would not be able to read. The two facilitators at the board and care, whom I trusted a lot, and the doctor supported this decision, as did Billy. My sister was not consulted, as she has not been in the loop on Mom's medical care since she opted out in 2009.
Along with the change in my mom's condition, upheaval is afoot all around me. Autumn is now here, and I am predictably mourning the loss of summer. This is something I always do, but even more so now that I don't really look forward to the holidays, and especially this year with Todd and Christopher taking a South American cruise instead of renting the house in Carmel as they have done for the past two years. Still, we will return to Carmel just before Christmas for our last stay at Casita de la Mar. Another chapter closing...
There have been so many closings and endings of late, or at the very least, upheavals: the demise of my family; Sandra's illness; the disappearance of my sister at a time when her support was needed in the care of my mom; the destruction of the Kona Village Resort, and the soon-to-be loss of our rental in Carmel. In so many ways I feel adrift, looking about for anything to hold onto, to keep me afloat, while I scan the horizon for land. And maybe that's a way-too-cheesy metaphor, but still, it feels that way to me.
Perhaps what is hopeful is my ability to scan the horizon. I am fortunate that I have sight, and even, on the odd occasion, insight. So while I have seen much of what sustained me in my life sink to the sandy bottom, I am still looking for what can buoy me up in my future. I have always been someone who held fast to traditions, but as those traditions have evanesced, and in some cases, disapparated, what will replace them? I know I am fortunate. I have Billy. I have LOL, and other friends, I have salsa dance, and the circle I know within the salsa community. And finding salsa was truly finding my bliss. Still, these days, as I look about for meaning in my life, I admit that sometimes my eyes fail me. That is when I remind myself of that old adage that there are none so blind as those who will not see. It's just that when you are trying to see from under water, everything can look a bit, well, blurry. Still, I know that my sight will adjust. Alas, my mom is not so lucky. . .Thank you for reading my blog while I am treading water.
Showing posts with label Medicare. Show all posts
Showing posts with label Medicare. Show all posts
October 5, 2013
June 20, 2013
Groundhog Day
Los Angeles, California
My mom was hospitalized a month ago and is now in her familiar rehab/skilled nursing center; a facility which considers her to be a "frequent flier." It was her fourth hospital stay; and is her fourth stay in this rehab facility, in less than three years. At the rehab center, she is even in the same room and bed where she has resided over two of her other stays. A lot of the employees there know me. I like them, and I feel they take good care of her. But a rehab facility is a place that you want to get out of as quickly as possible. Both she, and me.
I spent almost nine hours sitting beside her bed after the paramedics took her the ER. You don't dare leave, because that will be the time that the doctor will show up at her cubicle. You must trust me about this, because when it comes to ERs, between my dad and now my mom, I am also a frequent flier. I know the drill. The call came, from the owner of her board and care home, that 911 had been called, and Mom had experienced yet another episode of syncopy, and had been taken to the hospital. Which hospital? I asked to no avail. She had neglected to find out, so some hurried investigative telephone work ensued. Once I learned where she was, I packed up an at-hand copy of her Advance Directive (never give the copy, make them copy it), two Luna protein bars, and a two bottles of water, and headed out. Then the sitting ensued.
After it was determined that she had a urinary tract infection, there was a time in the middle when they were going to send her home with antibiotics, but I pleaded that I was not secure with her care at the board and care home, and mentioned the fluid buildup that her primary care physician had heard in her chest when I had accompanied her to an appointment two weeks before. Dr. Baca took pity on me. At least I think that is what happened, because he changed his mind and decided to admit her. Meanwhile, Billy and several of my friends, including Lydia, were texting me. Each time, after the doctor would round by, I could escape into the hall to make phone calls. I told Carol that once she was admitted I was going to go home and have a big glass of scotch. She offered to bring it to the hospital for me. Another amigo offered to bring tequila and a burrito. They all provided that necessary sense of a safety net, while I went it alone, with only the Luna bars and water.
The nurse who had been with us all day (12-hour shifts, don't ask me how they do this), finally came to take her upstairs to a room. I kissed her goodbye and told her that she was in good hands with John, the nurse, and I drove home, calling Billy on the way. While I was updating him, a call came in from the hospital. While again, I'm very good at this drill, I had, nonetheless, forgotten that she can't do the intake because of her memory issues. And the stupid thing is that they don't transfer information from emergency to the hospital at large upon admission (really, people?). So I needed to answer about 20-minutes of information pertaining to her medical history. I finished off the last ten minutes in the garage. Billy came out of the house into the garage, saw me sitting in the car talking, and gave me the universal palms-up gesture for wtf? I had just answered the question about previous surgeries (four, including two knee replacements) and could hear the nurse keying away. I gestured to Billy, the size of a tumbler and mouthed: scotch, one ice cube. He slipped back into the house and returned with one of our crystal glasses. I sipped the scotch, still in the car, still talking to the nurse, still into the ethos of Bluetooth.
The next day I got up and did it all over again. And continued to do it through a week at the hospital, during which time there was a suspicion of pancreatic cancer which, after two days, turned out to be a large cyst on her pancreas. Billy and I were her only visitors during that week. The day she was in emergency, Billy phoned my sister to tell her that Mom was in the hospital with an uncertain diagnosis and outcome. "I'm leaving on vacation tomorrow," she reported. "And I can't change my plans because I've already boarded the cats."
Huh? So she flew away the next morning, and we never heard from her for the entire week. The hospital would only give general information to anyone, besides me, who might call, so she had no access to what was really going on. But, when you're on vacation, who wants to be bothered by a little thing like your mother being in the hospital? Seriously.
I visited my mom every day for the week when she was in the hospital, and exactly one week after our day together in the ER, she was transported to the rehab center. I had left the hospital at 8:00 pm, and picked up Billy. We were at the facility when she arrived. Billy helped her get settled, while I did the intake with the nurse, and turned over her Advance Directive (again, for copying). At 9:45 we walked into the bar at Kate Mantilini's. The Dodgers were still playing, and probably losing (but that's a whole other post, as we like to say in blogtown). I ordered a Glenlivet with one ice cube. It was a nice pour. We shared good sourdough bread, some fat, roasted asparagus, and their macaroni and cheese which tasted insanely amazing after enduring the week that had began that long day that had ended with my knocking back that glass of scotch in my car. It had been a long week, and would be a long week to come. I would visit her every day that week as it was her first back in a place which was familiar to me, but, because of her failing memory, much less so to her. Now, after her third week there, I can get by with visiting only 3 or 4 times each week. We had a Care Plan meeting in the second week. Their plan is to keep her for the one-hundred days that Medicare will cover. My plan is to get her some physical therapy to hopefully strengthen her a bit, and get her out much sooner than that. Meanwhile, each day I have spent with her, in the hospital or rehab facility, is Groundhog Day.
I know how it is when you visit someone in the hospital, Mom says, looping this phrase over and over. I don't know what it is, but it doesn't feel good. I tell her that it doesn't bother me. And, in some ways, it is the truth. It is so familiar to me that I fall into the pattern easily, in spite of the stress and fatigue that rides along with me in the process. I know who to be nice to (everyone), I know what to bring with me in a heavy tote bag, I know how to listen to her and how to respond. I tell her every time when I see her that I will always be there for her. I remind her that we are family. When, each time before I leave, she tells me she loves me, I always respond I love you more.
My mom wasn't there for me when I needed her the most. When I was a teenager, even though my mom was a housewife and was ostensibly at home each day, I was left to flounder around and rely on my friends and my friends' families for the support and grounding all teenagers need. My dad wasn't really around. He was working long hours with a ridiculously far daily commute. I was left to find my own way when I was too young to do so competently. Now she is too old. And I won't do to her what she did to me. So, I loop along with her, telling her what I hope will be a comfort. I've done this over and over and over again, and will continue to do so for the rest of her life. Groundhog Day.
My mom was hospitalized a month ago and is now in her familiar rehab/skilled nursing center; a facility which considers her to be a "frequent flier." It was her fourth hospital stay; and is her fourth stay in this rehab facility, in less than three years. At the rehab center, she is even in the same room and bed where she has resided over two of her other stays. A lot of the employees there know me. I like them, and I feel they take good care of her. But a rehab facility is a place that you want to get out of as quickly as possible. Both she, and me.
I spent almost nine hours sitting beside her bed after the paramedics took her the ER. You don't dare leave, because that will be the time that the doctor will show up at her cubicle. You must trust me about this, because when it comes to ERs, between my dad and now my mom, I am also a frequent flier. I know the drill. The call came, from the owner of her board and care home, that 911 had been called, and Mom had experienced yet another episode of syncopy, and had been taken to the hospital. Which hospital? I asked to no avail. She had neglected to find out, so some hurried investigative telephone work ensued. Once I learned where she was, I packed up an at-hand copy of her Advance Directive (never give the copy, make them copy it), two Luna protein bars, and a two bottles of water, and headed out. Then the sitting ensued.
After it was determined that she had a urinary tract infection, there was a time in the middle when they were going to send her home with antibiotics, but I pleaded that I was not secure with her care at the board and care home, and mentioned the fluid buildup that her primary care physician had heard in her chest when I had accompanied her to an appointment two weeks before. Dr. Baca took pity on me. At least I think that is what happened, because he changed his mind and decided to admit her. Meanwhile, Billy and several of my friends, including Lydia, were texting me. Each time, after the doctor would round by, I could escape into the hall to make phone calls. I told Carol that once she was admitted I was going to go home and have a big glass of scotch. She offered to bring it to the hospital for me. Another amigo offered to bring tequila and a burrito. They all provided that necessary sense of a safety net, while I went it alone, with only the Luna bars and water.
The nurse who had been with us all day (12-hour shifts, don't ask me how they do this), finally came to take her upstairs to a room. I kissed her goodbye and told her that she was in good hands with John, the nurse, and I drove home, calling Billy on the way. While I was updating him, a call came in from the hospital. While again, I'm very good at this drill, I had, nonetheless, forgotten that she can't do the intake because of her memory issues. And the stupid thing is that they don't transfer information from emergency to the hospital at large upon admission (really, people?). So I needed to answer about 20-minutes of information pertaining to her medical history. I finished off the last ten minutes in the garage. Billy came out of the house into the garage, saw me sitting in the car talking, and gave me the universal palms-up gesture for wtf? I had just answered the question about previous surgeries (four, including two knee replacements) and could hear the nurse keying away. I gestured to Billy, the size of a tumbler and mouthed: scotch, one ice cube. He slipped back into the house and returned with one of our crystal glasses. I sipped the scotch, still in the car, still talking to the nurse, still into the ethos of Bluetooth.
The next day I got up and did it all over again. And continued to do it through a week at the hospital, during which time there was a suspicion of pancreatic cancer which, after two days, turned out to be a large cyst on her pancreas. Billy and I were her only visitors during that week. The day she was in emergency, Billy phoned my sister to tell her that Mom was in the hospital with an uncertain diagnosis and outcome. "I'm leaving on vacation tomorrow," she reported. "And I can't change my plans because I've already boarded the cats."
Huh? So she flew away the next morning, and we never heard from her for the entire week. The hospital would only give general information to anyone, besides me, who might call, so she had no access to what was really going on. But, when you're on vacation, who wants to be bothered by a little thing like your mother being in the hospital? Seriously.
I visited my mom every day for the week when she was in the hospital, and exactly one week after our day together in the ER, she was transported to the rehab center. I had left the hospital at 8:00 pm, and picked up Billy. We were at the facility when she arrived. Billy helped her get settled, while I did the intake with the nurse, and turned over her Advance Directive (again, for copying). At 9:45 we walked into the bar at Kate Mantilini's. The Dodgers were still playing, and probably losing (but that's a whole other post, as we like to say in blogtown). I ordered a Glenlivet with one ice cube. It was a nice pour. We shared good sourdough bread, some fat, roasted asparagus, and their macaroni and cheese which tasted insanely amazing after enduring the week that had began that long day that had ended with my knocking back that glass of scotch in my car. It had been a long week, and would be a long week to come. I would visit her every day that week as it was her first back in a place which was familiar to me, but, because of her failing memory, much less so to her. Now, after her third week there, I can get by with visiting only 3 or 4 times each week. We had a Care Plan meeting in the second week. Their plan is to keep her for the one-hundred days that Medicare will cover. My plan is to get her some physical therapy to hopefully strengthen her a bit, and get her out much sooner than that. Meanwhile, each day I have spent with her, in the hospital or rehab facility, is Groundhog Day.
I know how it is when you visit someone in the hospital, Mom says, looping this phrase over and over. I don't know what it is, but it doesn't feel good. I tell her that it doesn't bother me. And, in some ways, it is the truth. It is so familiar to me that I fall into the pattern easily, in spite of the stress and fatigue that rides along with me in the process. I know who to be nice to (everyone), I know what to bring with me in a heavy tote bag, I know how to listen to her and how to respond. I tell her every time when I see her that I will always be there for her. I remind her that we are family. When, each time before I leave, she tells me she loves me, I always respond I love you more.
My mom wasn't there for me when I needed her the most. When I was a teenager, even though my mom was a housewife and was ostensibly at home each day, I was left to flounder around and rely on my friends and my friends' families for the support and grounding all teenagers need. My dad wasn't really around. He was working long hours with a ridiculously far daily commute. I was left to find my own way when I was too young to do so competently. Now she is too old. And I won't do to her what she did to me. So, I loop along with her, telling her what I hope will be a comfort. I've done this over and over and over again, and will continue to do so for the rest of her life. Groundhog Day.
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About Me
- Bronte Healy
- California, United States
- Once, I came up with this brilliant idea (well, I thought so, anyway) that the key to happiness was to concentrate on three things -- to choose three interests, then focus and funnel your energy into that trio. I was an English major in college and have always written in some shape or form. So, my first choice was writing. I've always kept journals, and have also written plays, novels, poetry, and shopping lists. I do have a day job. It deals with numbers (assets and finances). Go figure. I went to college at a California University. I live in California, Los Angeles, but not downtown. No children, and sadly, between dogs at the moment (dog person, not a cat person). Enough info? I was going for just enough to not be a cypher, yet not enough to entice a stalker. And, I started my blog after being dragged, kicking and screaming, to do so. Blogs! Read about ME here, right? But I have been advised that this is a way to write regularly, and to put your writing OUT THERE. So, here goes. My name is Bronte Healy. Thanks for reading my blog.